One Chapter Closes, and A New One Begins...

Yesterday, late afternoon during one of Beckett's agitated episodes (which he was working hard to poop) his temperature went up. We had a slight scare that his surgery might be post pone again! I was heartbroken. However, the surgeon felt comfortable still going forward. When the morning came I was so scared to wake up and hear he had a bad night and surgery was going to be rescheduled. But I didn't! He had a good night and was already to go to the OR.

Joe and I got to walk down with Beckett to the OR. What a process that was. The staff here is truly unbelievable. Beckett was given sedation meds for the ride down, but like the fighter he is he kicked the whole way down there with eyes wide open. I kissed him a million times before they took him away. We went back up to the room to pack up our stuff and we moved into our new room. And then the waiting began....Everytime the PA came in to give us an update my stomach would drop....

First Update: Not that far into surgery. Just making the incision but so far he is doing great.

Second Update: Putting cannulas into the heart. He is doing awesome

Third Update: Everything is attached now hooking him up to the machine. He is still doing great!

Fourth Update: Surgery is done! Chest will be open for a couple of days till swelling goes down. They are now putting a dressing over it. They say everything went smoothly.

What a relief! Once we got word that he was on his way up we had to go into the waiting room while they transfer him back over. They had to pass the waiting room to get to his room. Every person/machine that passed my heart would drop. Finally I knew he was coming. The OR team was nice enough to stop so we could see sweet Beckett. However, so many people were around him, we only got a glimpse. The surgeon came to the waiting room and said he was very happy with the surgery and everything went so smooth without any glitches. He said his heart was very large. It looked as if the muscle grew over the coronaries making the heart work much harder and causing the muscle to dilate. They took a biopsy of it to do testing. He hopes to have an answer why this happened, but we might not ever know.  He then answered all of our questions. He is a hero to me. And like he said to us he is now part of our family.

Once Beckett was stable, they let Joe and I back to see him. Beckett looked great for everything he just went through. The PA explained everything going on with him and the surgeon showed us his pumps. It is absolutely amazing what they can do now to save people with cardiac disease. Since he is still critical after surgery, everyone talked me into not staying the night with Beckett. My first night not being with him. However, I feel comfortable in the hands we are leaving him in. His room was pretty busy with nurses and doctors settling him in that we quickly said good night to our sweet Beckett.

Leaving the hospital without Beckett is awful. I hate it. It's weird. I hate the situation we are in, but I cannot change it. I can only do whatever I can for my baby boy. And tonight it was taking care of myself. We went out and had a great dinner. I even had a nice glass of wine! It is beyond nice to actually be in a bed and not hearing or seeing monitors. However, Beckett is still on my mind. I called the night nurse and he said that Beckett is doing great and even wiggled and opened his eyes! What a fighter he is!!!! He is soooooo strong! I pray that he keeps doing great for the rest of the night and so on....

The support is completely amazing. We are so blown away by it! My amazing creative friend Kim (our amazing photographer) designed t shirts for us. You can order one here if you would like! If you do please send me a pic in the t shirt. Here is the link: www.booster.com/futurerockstar. Also, the people from the CHIVE organization reached out to Joe and will be starting a fund under GoFundMe. Once that is all set up I will let you know! Every picture, card, drawing, text, and fb post means the world to us. We honestly could not be starting this new chapter without you guys behind us! Thank you everyone!!! Hoping to get some good sleep tonight. I am pretty emotionally drained. We still have a HUGE road ahead of us, but I am so proud of my lil fighter for how far he has come since the nightmare that started two weeks ago. I love you buddy and I am sooooo proud to be your mommy!

Much love to all,
Joe, Taylor, and Beckett
#teambeckett #futurerockstar #onedaycloser

Auntie Alex's Gift to Beckett...couldn't be more perfect! Our little Rocky!