#teambeckett #futurerockstar

Welcome to #teambeckett #futurerockstar Blog.  We have created this blog to keep family and friends updated.  We appreciate your prayers, support, and words of wisdom of hope and encouragement during this time.  You can send cards and pictures to decorate his room at Ronald McDonald House attention: Joe Genuardi 1600 SW 14th Street Gainesville, Florida  32608. Please feel free to leave comments on this blog.

Beckett's Story:

Beckett was born on 10/12/14 at 7:41 am, weighting in at 6 lbs 14 oz and 19 inches long with a full head of hair.  We were blessed with a beautiful healthy baby.  In a couple weeks home I noticed signs of silent reflux symptoms which his pediatrician agreed with and started him on medication.  In his first month he gained weight and looked like the picture of health.  At two months he had his first vaccinations and did so well we visited Santa Claus afterwards.  A day or two after his shots I noticed he just was not acting like himself.  

Our nightmare began in the early morning hours of December 22.  After changing his diaper I noticed blood in his urine.  I called his doctor on call and was told to take him to our local ER.  Physician  on call thought it might be a UTI but by the grace of God decided to take an X-ray.  They noticed that his heart might be enlarged and decided to send him to Arnold Palmer Children hospital in Orlando.  On the way in the ambulance Beckett went into respiratory distress.  Paramedics were able to start oxygen right away.  If we decided not to take him to the ER this would be another story.

We were so lucky to have the best team at Arnold Palmer.  Beckett was whisked away and the next time I saw him he was in ICU, intubated and hooked up to many machines.  An echo cardiogram confirmed his heart was extremely enlarged.  They were able to stabilize him and then decided on the second day to airlift him to Shands Children Hospital at the University of Florida in Gainesville.  Because of bad weather they were unable to fly and would transport him via ambulance. After hours of waiting and having issues with the portable vent we arrived at Shands at 3:00 AM.

Now it is Christmas Eve.  Shands has the most up to date Congenital Cardiac ICU.  Beckett has a team of doctors who work around the clock to keep his heart pumping and to understand why this happened.  His diagnosis is Cardiomyopathy origin unknown.  There is no cure for this condition he has but there is hope with a new heart.   As of yesterday Beckett is on the National Registry listed as 1A waiting for a new heart.  Today, as I start this blog, he is stable but very ill.  We ask for your prayers in hope he receives a new healthy heart. For now I stay next to his bedside all day and night. My parents flew out the minute they heard the horrific news and have been by my side. Joe comes and goes between work.  I will continue to update this blog to keep you all inform.